This weekend we had another wonderful opportunity, Max got to experience flying a plane! Now I must admit I allowed (read chickened out) Michele and Ellie to accompany Max on his maiden voyage. From what I understand it was a very good thing that barf bags were handed-out at take-off, it seems Max likes to make extremely sharp turns in opposite directions in quick succession. In fact, Michele took some video of the big event and Ellie looks as white as a sheet and quite queasy for the duration of the 30 minute journey. Upon landing Max earned his wings and has not taken them off yet, this includes pajamas! Enjoy the photos of the big event!
Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
Max was born with three major congenital defects, one of the heart (Tetralogy of Fallot and a dilated aorta), a connective tissue disorder, and Congenital Short Gut (which means he has only about half the intestine of a typical child). The majority of his first year of life was spent as an inpatient at Phoenix Children's Hospital and because of the extreme rarity of Max’s connective tissue disorder he now receives highly specialized care at Johns Hopkins Children's Center in Baltimore, MD. Max has overcome numerous major obstacles including 40+ surgeries and procedures to date, the first at just 7 days old and open-heart surgery at only six weeks old. Max has made progress that no one could have anticipated – no one except his parents and big sister who never once gave up hope!
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