Living in a Bubble

I had planned on writing about all of the insurance woes I have been having this week getting meds, tests, and doctor’s visits approved by our health plan (gotta love United) for Max but something happened that made my problems absolutely insignificant.

We learned this morning that a precious little girl who was also part of HopeKids has passed away from complications of her bone marrow transplant. Although we have sat perilously on the brink of just such a disaster with Max on more occasions then I’d like to remember that first year of his life I simply cannot image the heart-wrenching pain this family is experiencing today. Unless you have lost a child prematurely there is no way of fathoming it, none of us can. There are no words we can say that will ease their pain and out of respect for this family and the spirit in which this little girl lived we should not even attempt to search for these words. It would be, simply put, an injustice to do so.

As I thought about all of this I realized something, I realized that sometimes as the parents of chronic kiddos we live in a bubble as we struggle with our daily issues. We selfishly tend to perceive our problems as the most difficult, the most earth shattering, and then something or someone comes along and makes us realize that there is a bigger picture. Others are suffering a far more difficult fate, they are saying goodbye to innocent lives that are passing far too early. Rest in peace little Rowan, rest in peace.