A few weeks ago the kids were invited to model for Phoenix Children's Hospital's annual fashion show. Although this was an experience I'd like to forget (have you ever tried to get a teenager to agree to wear a certain outfit or convince an eight year old boy that modeling can be fun?), I think their pre-performance shots came out great! Max complained for weeks that he had "quit that stupid show" but in typical Max fashion (no pun intended) he was the star of the show. He walked the runway sporting his huge trademark smile, blowing kisses at all the ladies. Afterwards many of the socialites in attendance came up to me to tell me that Max was just the cutest thing they'd ever seen. Can't say I disagree with them! So after weeks of practice and drama the kids did a wonderful job and asked if they could do it again next year, confirming that my children truly are trying to kill me..........
Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
Max was born with three major congenital defects, one of the heart (Tetralogy of Fallot and a dilated aorta), a connective tissue disorder, and Congenital Short Gut (which means he has only about half the intestine of a typical child). The majority of his first year of life was spent as an inpatient at Phoenix Children's Hospital and because of the extreme rarity of Max’s connective tissue disorder he now receives highly specialized care at Johns Hopkins Children's Center in Baltimore, MD. Max has overcome numerous major obstacles including 40+ surgeries and procedures to date, the first at just 7 days old and open-heart surgery at only six weeks old. Max has made progress that no one could have anticipated – no one except his parents and big sister who never once gave up hope!
1 comment:
Great pictures. Max is looking so grown up.
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