Hopkins - Day Four

Today was decidedly NOT a good day.

It just started bad and incremented itself into one of those days you wish you could have skipped altogether. There were several things I would categorize as not great news but there were two things in particular that can be categorized as plan old crappy.

First, as a mother I stink....I spent much of this week berating Max for having "made up" his neck pain during our first pre-op appointment. Today we were told that his x-rays from yesterday show a deterioration in his cervical spine, although not uncommon in children with connective tissue disorders it is something we'll need to watch (cause we don't have enough things to watch). It's also something I should not have made lightly of, but who knew? Max never complains that anything hurts so I assumed he was just giving the doctors a hard time.

Second, surgery has been postponed....twice. During our cardiology appointment we were told that a rather sick baby was born last night and needed immediate surgery, obviously this pushed the whole schedule out a day. By the time we saw the surgeon shortly thereafter we had been moved from Tuesday morning to Tuesday afternoon, another sick newborn. This is a good news, bad news situation. The good news is that Max will be the only afternoon case so he will have everyone's FULL attention....definitely good news. Must be an "Italian" thing but this surgeon from Rome seems particularly attentive to Max. More good news. The bad news however, is really bad news. If Max doesn't have surgery until noon we are going to have to keep him away from food for half a day, for everyone who knows Max you can appreciate how painful this will be for all involved.

Stay tuned.....