The kids were both on Spring Break this week and because Michele had paperwork to file at the Italian consulate in LA we decided to take a little road trip.....as if any road trip is "little" for the Marangella's and their traveling medical clinic (I really should have attached the photos of all the supplies we have to pack for Max "just in case" every time we leave home but I didn't want to scare anyone!) Our trip was split between the bureaucratic (gotta love the Italians and their myriad of rules, legal stamps, appropriate picture size for any and all documents, etc., etc.) and the typical tourist route . After a full day of appointments downtown completing all of the remaining documents Michele brought home from Italy we felt the kids had earned a treat -- so off we went to Mickey's House (as Max calls it). All in all the kids had a great time, Max and I rode "Small World" dozens of times while the more adventurous members of the family hit every roller coaster the Park had to offer.
Of course in our typical fashion we ended our stay with a few things we didn't have at the start. Max acquired a horrible upper respiratory infection -- his cough was a great way to get through those long Disneyland rides as most mothers grabbed their children and ran in the opposite direction. I was the lucky winner of a fantastic case of pink eye which leads me to believe that Disneyland is not the "Happiest place on earth" but rather the germiest -- just goes to show that lathering your children in Purel a thousand times a day doesn't always work! Max is back to school tomorrow and I'm back to work, I'm actually looking forward to the rest and relaxation of the office!
Ohhh, I love Disneyland! I can't believe you finally posted a picture of YOU! So glad you were able to get away and have some fun as a family. I'm sorry about the yuckies you caught while you were there though.
Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
Max was born with three major congenital defects, one of the heart (Tetralogy of Fallot and a dilated aorta), a connective tissue disorder, and Congenital Short Gut (which means he has only about half the intestine of a typical child). The majority of his first year of life was spent as an inpatient at Phoenix Children's Hospital and because of the extreme rarity of Max’s connective tissue disorder he now receives highly specialized care at Johns Hopkins Children's Center in Baltimore, MD. Max has overcome numerous major obstacles including 40+ surgeries and procedures to date, the first at just 7 days old and open-heart surgery at only six weeks old. Max has made progress that no one could have anticipated – no one except his parents and big sister who never once gave up hope!
1 comment:
Ohhh, I love Disneyland! I can't believe you finally posted a picture of YOU! So glad you were able to get away and have some fun as a family. I'm sorry about the yuckies you caught while you were there though.
Hugs,
Ann
Post a Comment