I don't know if you remember me but I was Max's speech therapist and neighbor when you lived in Stoneclife. I found your blog through another heart blog! Crazy small world! Just wanted to tell how beautiful and handsome Max is, what a remarkable young man! I can still see that sweet little boy... I am so happy to see he is holding his own and I know he will continue to thrive during his upcoming surgery. Never never never give up!
Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
Max was born with three major congenital defects, one of the heart (Tetralogy of Fallot and a dilated aorta), a connective tissue disorder, and Congenital Short Gut (which means he has only about half the intestine of a typical child). The majority of his first year of life was spent as an inpatient at Phoenix Children's Hospital and because of the extreme rarity of Max’s connective tissue disorder he now receives highly specialized care at Johns Hopkins Children's Center in Baltimore, MD. Max has overcome numerous major obstacles including 40+ surgeries and procedures to date, the first at just 7 days old and open-heart surgery at only six weeks old. Max has made progress that no one could have anticipated – no one except his parents and big sister who never once gave up hope!
1 comment:
Hi Patricia!
I don't know if you remember me but I was Max's speech therapist and neighbor when you lived in Stoneclife. I found your blog through another heart blog! Crazy small world! Just wanted to tell how beautiful and handsome Max is, what a remarkable young man! I can still see that sweet little boy... I am so happy to see he is holding his own and I know he will continue to thrive during his upcoming surgery. Never never never give up!
With much love, Kim Colquitt
Post a Comment