Max is holding his own! He continues to breathe well with the tube out and bi-pap on! It truly feels like a miracle, we must admit that we were fearing for the worst only because we have seen so much pain and suffering around us in the close quarters that is the PICU at Hopkins. Sleep deprivation is a horrible, horrible thing and it allows the mind to wander to places it should not go.
Last night as the night nurses came on many of them ran up and hugged and kissed Max as they were genuinely thrilled to see his breathing tube out (for those of you who have asked, yes there is still a nurse or two who will speak to me). During evening rounds tonight the doctor that I love so much was super excited to play the hero and allow Max to start drinking ginger ale, it is the first thing that has passed his lips since last week Monday. The look of sheer delight on his face behind his mask was priceless! There is hope that if he continues to do well he might be able to eat tomorrow. This is a very, very good thing because Max begged me for a bowl of cereal tonight -- he must be desperate because he HATES cereal!
None of today's successes guarantees that we are completely out of the woods. We still have to see if Max's heart will regain some of the function it lost due to surgery and the doctors have to find Max's "sweet spot" with blood thinners -- enough to not form clots but not have bleeding issues. Please pray that these things happen safely for Max.
Stay tuned.....
Wednesday, June 15, 2011
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2 comments:
Glad to hear, I've been waiting for the update. Love, hugs, and prayers to everyone.
So relieved that Max is seeing progress. Hoping you can all get a good night's sleep soon....& that Max can get a full tummy, too!
Love ya guys
Vicki
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