An Unexcused Absence

As of late there has been so much and yet so little going on that I just haven’t posted – no excuse really I just haven’t had a clear moment to think about things. Too much rattling around in my head I guess…..

My first priority has been getting us set for Hopkins. Although it feels like we just left I find myself in the middle of trying to hammer things out for our trip back the first week of December. This trip will be mostly post –op stuff (I can’t believe we are already six months out from that nightmare) but because we’re now up to more than seven specialists our week will be packed. It’s incredible to think that just four years ago we went to Hopkins to see one doctor, have one surgery, and be on our way. Since then we have learned so much about Max and his yet to be named syndrome that we are now seeing so many specialists it makes my head spin. Coordinating everything in one week seems like such an insurmountable feat, but thankfully everyone at Hopkins is so accommodating that somehow it all works out. We are fervently praying that everything will look so good that they’ll cut us loose for a bit and put us back on a once-a-year schedule. While I am counting on nothing, because Max is nothing if not surprising, it would be so nice logistically, financially, and emotionally to only have to make the trip once a year. Now I just have to convince the doctors that a summer schedule works much better for a bunch of thin blooded Arizonians!

In other news, Max is drawing to the end of another Fall football season. It has been especially sweet this time around to see him running down the field with less fatigue and difficulty. Thanks go out to Kids Playing for Kids for giving Max a chance to play and to Dr. Vricella, heart surgeon extraordinaire, for giving him the ability to play. Needless to say we have a lot to be thankful for this year!

As always, thanks so much for checking in on us!