A Day in the Life of Max and Co.: Fourteen Candles

Ellie's big day was great. She spent some time with her oldest friend who moved away two years ago and of course she had the birthday dinner and cake of her choosing. Who could ask for anything more?

Have a great week all!

Max

Max was born with three major congenital defects, one of the heart (Tetralogy of Fallot and a dilated aorta), a connective tissue disorder, and Congenital Short Gut (which means he has only about half the intestine of a typical child). The majority of his first year of life was spent as an inpatient at Phoenix Children's Hospital and because of the extreme rarity of Max’s connective tissue disorder he now receives highly specialized care at Johns Hopkins Children's Center in Baltimore, MD. Max has overcome numerous major obstacles including 40+ surgeries and procedures to date, the first at just 7 days old and open-heart surgery at only six weeks old. Max has made progress that no one could have anticipated – no one except his parents and big sister who never once gave up hope!

A Day in the Life of Max and Co.

Monday, September 7, 2009

Fourteen Candles

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Max

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