Wednesday, May 6, 2009

Mixed Reviews

We're just back from our once a year "all day" trip to the Mayo Clinic in Scottsdale for Max's cardiac check up. There was some good news and some potentially HORRIBLE news. Max's cardio echo (ultrasound of the heart) shows dramatically improved left-ventricle function (the left side of his heart is beating better and stronger) then what it has been since his open-heart surgery in June 2007. We'll take that news and run, two years later and we're finally starting to get back to where we were -- no one said Max was a fast healer!

The not so great news is that Max's aorta may be dilating again, this time further up from were they did his aortic repair during the '07 surgery. Obviously this is not great news but what makes it even worse is that this dilation is in an area of the aorta they do not like to have to operate on. We're not in a panic just yet because today's doctor (Max's Phoenix cardiologist as opposed to his New York cardiologist or his Baltimore cardiologist....just how many cardiologists does this kid have?) still needs to look at Max's previous numbers as well as his cardiac MRI from December at Hopkins to be certain that the aorta is truly bigger now than it has been. So unlike my typical self I have decided to wait and freak out only when things have been confirmed......does anybody out there believe me?

Tomorrow Max has his G.I. check-up, can't wait to hear what can/has gone wrong with that body system.

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