What a year it’s been, perhaps one of the toughest we’ve had. Obviously the first few years with Max’s health were extremely difficult but since about the age of three things have been relatively stable. Yes there have been a few intense moments: an open-heart surgery, the realization that we are dealing with an unknown genetic syndrome and a few others but none of these things came completely as surprises or at least not emergent surprises. Emergency rooms, surgeries, and hospital stays were neatly tucked away in the back of our minds as what we used to do not what we do now. This last year has quickly shown us how terribly wrong we were to allow ourselves to be lulled into a false sense of normalcy, nothing can be “normal” when your son faces so many serious health issues. Twelve months ago we didn’t even know that Max was having vision problems. We didn’t know that his aortic valve would give out so soon. We didn’t know….
But that was then and this is now. Its 2011 and now we know. Over the last day or two I must admit I’ve cringed to hear people say how happy they are that 2010 is over and how much better 2011 will be. All I can think is that yes 2010 stunk, but how much better can we realistically expect 2011 to be? Max has two major surgeries in the next six months each involving a good amount of recovery time. How can any of this be “better”? Indeed, 2011 promises to be another tumultuous year but we’ll get through just as we’ve gotten through all the others – together. We’ll cry when we need to, laugh when we can, and kick butts when we have to! It won’t be “better”, it won’t be “worse”, it will just “be” and that’s OK when it’s all about the most remarkable little boy in the world whose smile, sense of humor and shear sense of self makes it all “better”.
Monday, January 3, 2011
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2 comments:
Dear Family, I am the fellow who sent the Yankees baseball stuff for Max via Rooms Of Joy. I hope he received them as I understood that he was in Baltimore at the time. If not, please contact them to obtain. Tell Max that we Yankees fans are used to winning even when we have faced some pretty tough situations. Each day is a new ballgame and a chance to improve our position from the prior day. It is a long 'season' and the results of any one day do not foretell the end result. So everyday in baseball begins with hope and anticipation. Enjoy the game. A bad loss makes us all the more appreciative of the next win. But I am sure the family knows that. In the meantime, Max will continue to be in my prayers.
Patricia,
Loved meeting you for lunch recently!!! Your post reminds me of our conversation...I was so impressed with your optimism and strength. It is really refreshing spending time with someone with your strength and fortitude. We should all be so lucky to have a friend like you:) Thanks for taking the time.
Hugs to Max and the family,
Kim
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